EDSers.com was initially launched six months after I received a diagnosis of Ehlers-Danlos Syndrome (EDS) as a pharmacy student at the Ernest Mario School of Pharmacy. As a result of public demand, EDSers.com transformed into the EDSers United Foundation (www.EDSers.org), a nonprofit organization dedicated to serving those affected by EDS and other rare genetic conditions. Everyone at EDSers United is dedicated to generating awareness, advancing EDS and other rare disease research, and effective community support and rehabilitative programs for the rare disease community.The team at EDSers United is determined to establish a state of the art facility, which will be the first of its kind. The Research and Treatment Center for Rare Genetic Conditions will be built within the state of New Jersey. This facility will consist of an open-source R&D Laboratory and a treatment clinic where rare disease patients can take advantage of skilled health care professionals that work together as a team to manage complex cases. This center will primarily specialize in diagnosing, treating and managing Ehlers-Danlos Syndrome and welcomes other rare disease patients. Dependent on patient demand, this center of excellence will have the capacity to specialize in other rare genetic conditions as well.If you would like to assist in the development of the Treatment and Research Center for Rare Genetic Conditions, we encourage you to join us and get involved. If you are a professional, we could use your expertise. You don't need to have a rare genetic condition in order to work with us. We are looking for professionals with a good heart and passion to help the rare disease communities in need. Join EDSers United's efforts to provide support to hundreds of thousands of people affected by debilitating rare genetic conditions like EDS by visiting www.edsers.org and contacting us with how you would like to help.